Normalizing.

Rudy since you're asking... I am writing...

Since Rebel has been home, she's had a hair appointment, gone out for lunch with the girls, visited her school, gone to the boyfriends' parents' homes, helped me buy her sister a cell phone ( another story for another time - Let's just say it's way nicer than what I use okay?!) and is learning how to disconnect her IV anti-biotic pump when the meds are done.

The home care nurse comes at the crack of dawn - 7:30 AM to get the pump going. It takes about an hour to run and then she goes back to sleep for a couple of hours or not. SU of course, sleeps through all this. WhatEv!

RebelTweeny and I both have colds. NOT a great way to start her life at home again. I have lysol wipes, anti bacterial soap and moisturizer, anti bacterial spray. Everything gets wiped down before Rebel uses it - keyboard, mouse, telephones, light switches and the hand washing... often and every time we touch anything.. whether we need it or not.

She still gets blood drawn once a week, a biopsy and follow up with her cardiologist once a week to ensure her anti rejection meds are balancing. She is currently taking about 14 meds in the morning, a couple at lunch and about 5 or 6 in the evenings.

But she is looking good and feeling good. We are planning a belated birthday party - probably on the 22nd of May or June as the number 22 has played significantly in her life lately. She went into the hospital on Dec 22 we celebrated Christmas on Jan 22nd, she got the infection on Mar 22 and her new heart on April 22nd.

If you didn't know she had been so sick, by looking at her you'd think yes Rebel has lost weight and looks great. Her life is normalizing.

In the back of my mind I am wondering how long it will be before the SU decdies to kick things back with the whole separation thing.

I need a rest before that starts up again.