Sunday, February 03, 2008

Officially!

Rebel was officially re-listed on the heart transplant list on Friday. I believe the committee has her at Stage 3. Her doctors want her to continue getting stronger which will help her after recovery from a transplant.

As physio therapy continues Rebel is walking more, sitting up longer and doing her part to get where she needs to be.

Eating hospital food is an ongoing challenge, (we can tell she is getting better - she's complaining more!) but Rebel is mostly forcing herself to eat the stuff put in front of her for the same reasons. She knows she has to get strong and eating properly plays a big role, whether or not she enjoys the tastes and flavours or lack there of.

I met the Hospital's Foundation Director. She wanted to know a little bit about Rebel for the Youth Centre fund raiser and for the telethon. She plans on attending the to thank people and to let them know a little bit about the Heart Institute. When we were done I mentioned how Rebel was disappointed that she couldn't get the Internet even though there seemed to be port access. Well this woman's office is across the hall from the VP of IT. Rebel had access that afternoon. Because this ICU section is brand new all the Internet and cable access is built right into the infrastructure. They let her have access!

When she leaves SCICU she'll be back to a "regular" type room with less access so she's enjoying getting caught up and chatting for the short period left in SCICU.

The SU came to visit Rebel one evening before I had left and before even saying "Hello daughter how are you doing today" managed a succession of negative complaints and whines either about me, or the Girl's boyfriend. sigh... It wasn't very nice. I shake my head. It's exactly the kind of behaviour we are NOT wanting to get her engaged in. I pretty much ignored his whines, or tried to disengage him and continued talking about whatever it was we were chatting about . I also waited some time before deciding to take my leave.

I mentioned to SU when he got home that his behaviour upon arrival at the hospital needed some work, and to please think before whining about trivial matters and if he needed to air them, to please not do it in hospital. He, for a change, had nothing much to say. On the other hand he and Rebel have had some pretty intense conversations of their own about how she landed in the hospital. They are managing to create some kind of relationship which is good.

2 comments:

Anonymous said...

Miracles DO happen, thanks be to God to get our Rebel this far! Wonder's never cease!!!

Happiness is having internet access! *wink* :D

Keep negative SU out, keep positive M in!!!! We are all continuing to prayer for a futher recovery......

Much love and hugs!

Lily

Rudy said...

I can't believe SU would pull that shit in the hospital. What an eejit fucktard! when he enters that room it is ALL about Rebel and her healing and doing what is best to support that healing. What a fecking dork!

I am glad she is back on the list. As fast as she is improving I hope she doesn't have to wait too long for a permanent solution. I know that will mean heartbreak for some other family but the best is to make good come of it. I am not praying for the heartbreak but for the good that can come out of what has already happened.

Is there life without internets? No wonder Rebel needed pain meds LMAO

as always {{hugs}} and +prayers+