en·nui Old French annoyance;weariness and dissatisfaction : BOREDOM spousal boredom, annoyance
I'm a wife with a husband and kids. "Should I stay or should I go?" Shouldn't I work at making it work? For the kids? It's tough. It's not what they told us in marriage class. Well it is but who'd have believed it! I'm changing focus. It's NOT worth staying for kids. How to move forward?
That and Rebel Heart Matters in 2007-08 have changed focus nonetheless- it's still about the ennuie.
Thursday, January 31, 2008
Mobility.
Rebel got her portable LVAD on Tuesday. This means that she has more ability to be mobile. The nurses got her up yesterday and she took two laps around the nurses stations twice! The profusionist is talking about showing her how to take a shower with her device and getting off the floor to take a tour around the hospital. Rebel might go up to visit the nurses on the 5th floor, or she might go down to the main floor to sniff some fresh air. Rebel is still overwhelmed by this.
It is likely Rebel will be back on the transplant list either this week or next. And they are also starting to talk about a move out of SCICU to the ward. As one of the charge nurse told her, the SCICU is like a cocoon where patients are sheltered and looked after and allowed to take their time to get better. And I think as much as Rebel is feeling tentative about leaving the SCICU the nurses all have a special attachment to her as well. Leaving is a good step, but after the last 6 weeks in a quiet, helping atmosphere a regular ward will be a big step. They told her she won't leave though til everyone thinks she is ready and able. And she is getting there.
This is the laptop like suitcase that runs the device the ventricular assist device that is attached to Rebel to allow her to be mobile, made by Thoratec.
4 comments:
Anonymous
said...
This is wonderful to hear that she is mobile. It will take time for her to get used to it all but she is such a fighter that I am positive she will adjust and learn to enjoy this bit of mobile freedom.
Praying that she gets back on that list asap and that a suitable heart is found quickly.
I'm so happy to read positive reports of Rebel's progress. I hope she regains her strength quickly so she can go back on the list.
The sad thing, of course, is another family must suffer. I hope many people watched "Oprah" today. The story of an organ donor and his family was the focus. It was very touching, and left all the viewers with a very strong message: sign up to be an organ donor, and then make SURE your entire family knows of this wish.
The donor's family was able to meet many of the people who received their son's organs. All feel blessed.
I was stuck in SpousalEnnuie for what seems to be a monumental amount of time. The story started there. Now, that the wrenting of the 25 year relationship is a fait accompli, it is time to move on and deal with a new life - a restructuring. This is the story continued.
4 comments:
This is wonderful to hear that she is mobile. It will take time for her to get used to it all but she is such a fighter that I am positive she will adjust and learn to enjoy this bit of mobile freedom.
Praying that she gets back on that list asap and that a suitable heart is found quickly.
love, hugs and prayers,
~ blondie
On the road again... :-)
Huge, huge steps are coming. I am sure that she will handle them well.
Exciting news that they are talking about putting her back on the recipient list.
as always, {{hugs}} and +prayers+
Great news for the Rebel's progress!
Happiness is a *sniff* of fresh air and visiting new hospital areas!
YOU GO REBEL!
*much love*
Lily
I'm so happy to read positive reports of Rebel's progress. I hope she regains her strength quickly so she can go back on the list.
The sad thing, of course, is another family must suffer. I hope many people watched "Oprah" today. The story of an organ donor and his family was the focus. It was very touching, and left all the viewers with a very strong message: sign up to be an organ donor, and then make SURE your entire family knows of this wish.
The donor's family was able to meet many of the people who received their son's organs. All feel blessed.
{{hugs}}
Annie
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