Tuesday, January 08, 2008

Clearly Making A Difference.


My goodness! I walked into Rebel's room today and she was *quite* alert. She was pretty emotional for a bit... The Heart Transplant Coordinator was there too. She visits Rebel every day.

Rebel's first comment to us both was mouthed through her breathing tube... BA-BEE? What? Baby? and she shook her head yes. The ticking of the LVAD was making her think she had a baby on her tummy. We laughed as did the nurse as no one had never heard that one before. So we told her what it was and that she was sort of bionic and we think she accepted that even if it seemed to be freaking her out.

She was far less agitated than yesterday. We told her what day it was... and I think that kind of threw her for a loop. I told her we would celebrate Christmas with her once she was strong enough to open her presents.

Things were more interesting.. as she motioned for paper and pen and wanted to write things down. The first few things didn't make any sense. I couldn't read what she was writing. The nurse lightened up her sedation, and finally I could read what she wrote.. *school* My Rebel was worried about school! I told her that her principal wanted to visit her and she kind of rolled her eyes and shook her head no. I asked her if she wanted to do home work - and she did give me a look at definitely said.. "are you effing kidding me?!"

She seemed to be worried about a few things and I reassured her that there was no need. I told her her dad and I had everything under control. All she had to do was continue to get stronger so the breathing tube could come out, and her body could continue to regain its strength.

SU said that she was writing a lot when he went to see her after work. And even in her writing there was some humour too. No doubt this will tire her out. But it appears that there is some improvement in her strength. Her heart still beats erratically I think... but the nurse told me that as long as the LVAD is there it is keeping time and beating properly for her. I have to trust them. Small steps.

Prayers and positive energy are clearly making a difference,as is time and the amazing work of the dedicated medical people at the Heart Institute.

7 comments:

Rudy said...

YAY!!!!!!!!!!!!

I am so happy for you and Rebel. It must be SO good to finally be able to communicate again.

The baby was funny :-D

I am sure she will become agitated at having to write (especially if she was a talker) but for now, what joy! Praise God!

Perhaps, this will allow RT the freedom to express some of her concerns as well.

I am so happy for you all!

more {hugs} (happy bouncy {hugs}) and always prayers.

Anonymous said...

M,

This is absolutely fabulous! I am so happy to see her so alert and wanting to communicate.

Prayers of thanksgiving are included as we continue to storm heaven on Our Girl's behalf.

love and hugs,
~ blondie

Anonymous said...

WOW, I am soooo excited for all of you!! Can you imagine!!

Baby? Wow, what the subconcious mind thinks.....

Can you imaging that she is more concerned about you and the SU, what a great kid.....

God Bless the Doctors, NURSES and attendants....they are truly amazing.......

We will all keep the prayers and positive energy going.....Great News and HUGE steps.....

Say a big hi for me please.

Love and Hugs,
Lily

Anonymous said...

Hi M,

Along with Tinkerbell, here is my motivational quote I'll be using as my mantra....

Isaiah 40:31: “But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary; they will walk and not be faint.”

Run for the Rebel!!!!

Lily

Anonymous said...

Lily,

One of my favorite verses. I think it is most appropriate.

I love that you are Running for the Rebel.

Are you are a Tinkerbell fan?

Good luck on your run. When do you leave?

~ b

Rudy said...

Lily,
I have a tapestry of an eagle soaring over a valley with that verse on it hanging on my family room wall. It is my friend Karoline's favorite verse as well.

Great minds and all that. :-)

Anonymous said...

Yes, I love Tinkerbell, actually one of my cats was named Tinkerbell, well, when I first got the kitten it was sooo small and cute I thought it was a little girl, so I named it Tinkerbell, after the first visit to the vets, they told me in fact he was a little boy, so I called him Tinker, once he was neutered he became Tink......hahahaha

Anyway back to Tinkerbell,

They say when you run long distances you need to have a reason to do it, so I asked M what was a favourite of Rebel's, something I could carry with me on my Run for the Rebel....she sent me a lovely picture of Tinkerbell, which I will carry with me while I pray for the Reble's health....

I leave Friday morning through Chicago, should be in around 6pm Phoenix time.....

Talk with you soon,
love and hugs
Lily