Two down - Three to go!

Two of five chest tubes were removed today. "The numbers" showed that they were not draining any longer and it was time they came out. This was a pretty quick procedure... but it kind of freaked out our Rebel. Now that she is wide awake and firing on most cylinders her fear of pain is kicking in. The nurses reassured her... no worries... we take these out.. we don't let the doctors near you. And three of them were around to get two tubes out. She was fine afterwards. The pain medication probably helped.

Rebel is continuing on physiotherapy twice daily during the week. It pretty much exhausts her every time, but she manages to get done the work that they need her to do. Even sitting in the cardiac chair for longer periods of time shows how strong she is getting.. Thirty five minutes in a chair and we're pretty happy.

A couple more firsts yesterday and today. First glass of milk today. More smiles. A popsicle and even soup. It was cream of asparagus and not well received. Rebel is getting her nutrition through a feeding tube still so she isn't really hungry nor has much of an appetite. They want her to be getting all her vitamins and minerals so feeding tube it is, yet they want her eating real food and need to balance that. So the thought is to only use the feeding tube at night to supplement what Larissa doesn't eat during the day.

We watched Superbad today. A gift from the next door neighbour. Oy! She was laughing which was wonderful to see. I now remember where most men get their dorkiness. Yet at the same time, it was kind of a sweet movie too. For boys this age to be able to express themselves and tell their best buddy "I love you" is pretty important. This must make a difference for men as they grow up. I mean my best girl friends and I are pretty much on this page and always have been, but boys and men... must be a different story especially if it's always been about girls, sex, beer sex ...

Did I mention SU is going out to a bar tonight because one of his young friends has a gig? sigh... I like the guy- he sings his own songs and all, AND he does call us regularly to ask about Rebel, but really, does SU think it's okay to be going out?

Maybe it's just me.